Experiences of UK and Irish family carers of people with profound and multiple intellectual disabilities during the COVID-19 pandemic
Mark Linden, R Leonard, T Forbes, M Brown, L Marsh, S Todd, N Hughes, M Truesdale · 2023
Read Experiences of UK and Irish family carers of people with profound and multiple intellectual disabilities during the COVID-19 pandemic by Mark Linden, R Leonard, T Forbes, M Brown, L Marsh, S Todd, N Hughes, M Truesdale (2023) in the Tower of Babel, a free online library of public-domain works preserved in clean, searchable text. No sign-up. The full text is served as a plain-text file at a predictable URL, where text is present: https://antarctic-labs.com/tower-of-babel/pmc-10714525.txt.
Description
Mark Linden and co-authors explore the pandemic years for family carers in this 2023 study. They spoke with carers of people with profound and multiple learning disabilities in the United Kingdom and Ireland. Such people need heavy, constant support, which already strains families, and many outside services stopped during COVID-19.
The team ran 32 online focus groups with 126 carers across five countries. Three themes came out of the talks. The pandemic cut both ways, bringing change and fear but also some gains. Carers struggled to get support, and some services felt absent in all but name. Caring itself was constant, and many carers felt undervalued. The study asks what the long-term effects on these families may be.
Catalog record
| CREATOR | Mark Linden, R Leonard, T Forbes, M Brown, L Marsh, S Todd, N Hughes, M Truesdale |
|---|---|
| YEAR | 2023 |
| COLLECTION | PAPERS |
| FORMAT | TXT |
| FILE SIZE | 53 KB |
| VERSION | 1.0 |
| LICENSE | CC BY 4.0 |
| RIGHTS | CC BY |
| SOURCE | Europe PMC |