It Goes Beyond Anxiety: Experiences of Family Members and Caregivers of Epilepsy Care and Support

Description

Ofhani Prudance Musekwa and Lufuno Makhado explore, in a 2023 case study, what families face when they care for a person living with epilepsy. Caregivers do much of the daily work of seizure care, yet their own grasp of the condition and the help they get from professionals are rarely examined. The study's title signals that the strain runs deeper than anxiety alone.

Fifteen family members took part in face-to-face interviews: eleven parents and four siblings, most of them the main caregiver. Two themes emerged from the accounts. One covered hands-on practice, how families handle seizures and treatment. The other covered knowledge, counseling, and support, where families felt thin backing from health workers. The authors conclude that caregivers need care themselves, and that stronger support would lift standards for the whole family.

Catalog record

Source: https://europepmc.org/articles/PMC10712244